What's Wrong With Wyatt?

Wyatt's Story

Wyatt was born on June 27, 2013, and had an emergency transfer to the Children's Hospital of Eastern Ontario (CHEO) because he could not open his mouth. The fear of needing an emergency intubation was of major concern for all of the medical staff, therefore, he required specialized care that only CHEO could provide.

 

We spent the next two weeks in the Neonatal Intensive Care Unit (NICU) and then an additional two months in Complex Care or the Ward. This is where we met Wyatt's Pediatric Doctor, Kheiri Issa. Wyatt's care at CHEO improved immensenly once Dr. Issa took Wyatt under her wing. By having a "hub" where all of the specialists referred to; Dr. Issa, Wyatt's prognosis for his Congenital Trismus was as follows:

 

- physiotherapy done on his mouth twice a day;

- suctioning nasally and orally when needed;

- having him connected to a Oxygen saturation monitor (O2 Sat monitor);

- teaching him sign language;

- being fed through a Nasal Gastric tube (NG) until he learns to eat on his own.

 

As his parents, we were taught how to read the O2 monitor, feed and suction him, as well as, perform his physiotherapy, which was extended to chest therapy in January 2014, after a bout of pneumonia.

 

Wyatt is currently being followed by the following specialists:

- Ear Nose and Throat (for Botox injections, to paralyze his mastication muscles);

- Neurology (believes he has myopathic muscles around his jaw);

- Genetics (Wyatt may have a rare syndrome);

- Physiotherapy (this includes an Osteopath);

- Anaesthesia (to monitor Wyatt's improvement, so we can eventually get a Gastric tube procedure).

 

Additionally, Wyatt does not blink very much, although he is slowly improving. He blinks intermintently, and rarely do the eyelids blink in unison. After a feeding study, it was confirmed, Wyatt does not swallow. As his parents, we believe, Wyatt could not swallow or open his mouth in utero, (he had a low birth weight and mom had an abonormal amount of amniotic fluid).